Thursday, August 27, 2015

Laura and Scarlett Lopez

Our team suffered a blow earlier this week when one of my best friends and my college roommate Meghan announced she would no longer be able to run Ragnar with us because of a hip fracture from training!  We scrambled a bit, but today it is an absolute pleasure to introduce you all to the newest member of #werun22q, Laura Lopez, running on behalf of her 22q-tie Scarlett! 


"Hi everyone! I'm originally from South Jersey, but thanks to the military (and a 22q diagnosis), our family has moved five times in the past four years! My husband, Alex, is currently deployed. I started running about a month after he left, so I've only been running for about 3 1/2 months now. I needed to do something for myself and needed an outlet from all of the stress I have between worrying about a deployed husband and taking care of my 22q daughter, Scarlett, and my one year old, Harper.

Scarlett has 22q distal deletion syndrome, and she was diagnosed at a month old. She was only 3 pounds, 10 ounces when she was born, which is what led us to genetic testing. Since that time, I've learned more about 22q than I ever thought possible, and more importantly, I've learned how amazing and capable my daughter is. Scarlett has taught me more about life in her four years than I've learned in my entire life. I'm honored to be her mother. Through all of the struggles, I just remind myself that she's stronger than I could ever be.

I'm coming onto this team as a late arrival. When I first heard about the amazing group of 22q parents and supporters that were running the Ragnar Relay for 22q awareness, I thought to myself, "I can't wait to be on that team next year". But here I am, two months later, on the team! I'm ready to run some miles and conquer my first major race, all in the name of 22q!"

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It completely amazes me how awesome this 22q community is.  I think I may have mentioned it before, but it's worth typing again.  Kate and I met through facebook and instagram, when we realized through looking at pictures that we had more than a couple of things in common.  When we decided to pitch this team, we both reached out to people we knew who either ran, or had potential to be a runner (I'm looking at you, awesome Kari!)  This week, when a little panic set in because we are 5(!) weeks out from race day and were in need of another runner, STAT, Kate texted me and said, I know that Laura started running a couple of months ago and was interested in running with us next year.  I found her on facebook and next year became RIGHT NOW!  I am so thankful, Laura, that you were able to work things out with your family and join us!  

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We are ramping up our begging efforts for donations to the Dempster Family Foundation!  The race is 5 weeks from tomorrow!  We will need to get things in order for mile sponsorships at least a week before we leave for DC - if you are anything like me, I get the last minute procrastination thing.  Really, I do!  But, if you are at all interested in dedicating a mile for your loved one, please consider doing it today!  No donation is too small!  Help us meet our goal of raising funds and awareness for 22q!

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